State: active — AI translated
Center for Rare Diseases Aachen
Center for Human Genetics and Genomic Medicine
I have read the information material about the research study "Computer-Assisted Image Analysis in the Diagnosis of Genetic Disorders" (abbreviated: PEDIA AC), or it has been read to me, and I have been informed about my rights as a data subject. I had the opportunity to ask questions, and all questions I asked were answered to my satisfaction. I have the right to request further information about the project at any time.
I voluntarily consent [on behalf of my child / the person in my care] to participate in this study. I have been informed that I may withdraw my consent at any time and without giving any reason.
In the event of withdrawal of consent, all attributable data will be deleted, and this decision will not negatively affect me in any way.
I am willing to participate in the study and to provide my image data as well as encrypted clinical and genetic data for this purpose.
I understand that the images may be seen by medical and scientific professionals who use the databases. Although these images are used without identifying information, such as my name, I understand that someone may recognize me. I also agree that my images may be used for training purposes for human and artificial intelligence. This includes the education of medical students and resident physicians, as well as machine learning.
In addition, please tick the applicable items:
If you consent to being recontacted for journal publication or scientific follow-up investigations, please leave your contact details: